A difficult past twenty-four hours.
Arrived at the doc’s office for chemo. Not on the schedule – was scheduled a week ago.
After some emotional back and forth, (with thanks again to my Sister, who has been madame ombudsman for many of my trials) and my ex-wife, who provided transportation (through the American Cancer Society last week and this) who got in the face of the doctor and staff to get the error corrected, saw the doctor both at the car and in the office before a decision was made.
I was to be admitted overnight to the adjacent hospital to take the chemo and for observation.
Part of the reason why is he had no aids beefy enough to assist me moving from the car to the wheelchair ; and wheelchair to chemo recliner.
So I went to the the hospital and waited two hours in the painful chair for admission.
Finally got into a bed around 1100 – chemo began after 1400.
They left after 0130 Saturday – chemo began on Friday.
Hardly the five /six hour time frame it would have been in the doc’s office.
Then, blood work @ 0200, vitals @ 0500,an IV @ 0600, pain from too rapid infusion @ 0620.
HARDLY A GOOD NIGHT SLEEP!
The ‘good news’ – no ill effects (nausea) as yet from the chemo!
The ‘less than good’ news – the oncologist, based on my age and weakness gives me a prognosis of 20-30% of beating this variety of lymphoma!
Quality of Life?
The assisted care facility is of poor quality.
Hardly quality of life.
Do I give up and move to a hospice or home?
Judy doesn’t have the tools to care for me 24/7. And I don’t want her to be forced to watch me deteriorate. And go.
I have new (theoretically better?) insurance after 1 January, so there may be other options soon.
And I may get one or two more chemos out of this insurance.
Guess it’s up to me to decide.
This Wednesday my insurance stops paying for my nursing facility and PT.
I am still unable to walk without a walker, and going home is problematic.
Fortunately, my lovely Sister stepped up and I am scheduled to be moved to another home, on her dime.
Hopefully, my rehab will continue and I will soon be walking.
Unfortunately, Judy is having financial difficulties involving both our house and car. She has returned to work, but lost many clients due to her long absence.
Any help would be appreciated.
When it rains, it pours.