Well, I’ve broken on through – the first of four chemo sessions (with week three OFF), session one ostensibly the worst! Or at least the longest…
0730 to 0430 yesterday (Tuesday).
Two different flavors, plus the anti-nausea meds (which had the worst of the side-effects thus far!)
We’ll see what’s in store NEXT Tuesday…
Meanwhile, I’m experiencing light nausea – and my meds are downstairs. (Be prepare
Oh well, live and learn…
I live in a sea of estrogen.
Two dogs; two cats. A woman.
Then there was the other male.
Another dog named D. J. Aka ‘the boy’, Don Juan, Boo-ba-do, Boo, Boob.
He kept the females in line. If the other dogs took to barking at miscreants outside (who had the indecency to walk down the public sidewalk in front of the our town house) he would bring up the rear, barking from under the toilet!
His other jobs were stealing others food, and inspecting hind ends for cleanliness.
He has been losing his hearing, sense of smell and sight for some time, making more like a Roomba than a dog. And he loved falling asleep wherever you needed to be!
He just turned 16!
The past couple of days he simply refused to eat.
He left us last night.
He was a good dog…
(If it is, I will remove it!)
Over the past few weeks, I have become weaker. Lymphoma can do that. I’ve loss muscle-mass, making getting out of my orthopedic lift chair difficult, sometimes even impossible.
The chair herself is now broken and irreparable. Chair experts advise I am in need of a new one. This is not like buying an ordinary chair. They are build for patient height and weight, and many stores simply want to move them off the floor, patient need come-what-may.
And, of course, I’ve few funds.
My friend (an ex-gf) said she will set up a donation page toward this end. And my ex-wife (a different person!) told me she to help!
A quality chair can cost well over $1200, funds I do not have. And, given my circumstances I NEED a chair with a warranty.
And in the past month I have had to call the fire department FOUR TIMES to help me get out of my broken chair!
(How pathetic is that!)
Below is Judy’s Fundly Account she set up on my behalf. Of course, there is also the PayPal account on this blog.
If you can take action, terrific, GREAT! (and THANK YOU) If you are unable, please keep a good thought…
My friend Guffaw has been handicapped since he was 12. And now he has lymphoma for the second time. He cannot get up easily normally, but now is so weak, it is impossible. Help..
So, I received two voice mails Wednesday, regarding scheduling the scheduling my next CT/lymph node biopsy. (apparently they didn’t get enough diversity last time.)
Unfortunately my cellular phone took a dump, and I didn’t receive them until Wednesday night!
So I called Thursday morning, early. At length, I was placed in a que, and told they would call me before 1300. If I didn’t hear from them, I was to call them. Subsequently, I wad placed in another que, and the would call me letting me know when they would call back. I was told 45 minutes. The said they would call after 9 minutes. They did eventually call, to advise me they were unable to take my insurance.
I spent most of my chair waiting for a phone to ring, only to be told they were unable to assist me.
Customer service, anyone?
My oncologist won’t return until Tuesday. His assistant was supposed to call me yesterday afternoon.
Guess what happened?
It’s no big deal, just being used to develop the correct chemotherapy medicine for me.
Since Thursday last, I’ve been living on oral medication, in the hope that it will keep my blood count at a correct level. lest I return to the hospital.
Today, I go to the oncologist/hematologist, to hear about his analyses of my bone marrow, blood and numerous blood tests. His analyses will determine what variety and schedule for chemotherapy I should be receiving.
And, of course when this will begin, and when I shall receive my ‘port’. (for the uninatiated, a port is a large IV, installed mid-chest, to accept said medication. They cannot use an arm, as those blood vessels are too weak to handle the poisons they are to give me.)
Better than dying of lymphoma, I suppose.
I will keep you advised, as I can.
Thank you all for your thoughts and prayers. – Guffaw
aka a cheat for a blog post?
SO, I finished the blog, and began my best task, ignoring the next Wednesday task is laundry!
(which I abhor, but must be done!)
And I get a telephone message from my kidney doctor – DROP WHAT YOU ARE DOING AND GET TO A HOSPITAL
Which I did.
Seems my blood test showed high levels of one chemical and dangerous levels of another!
What a way to start the day?
This was last Wednesday morning…
HE’S BA-ACK! (as of this Monday)
Aside from the illness issues, the saddest part was I broke my promise to you. Since March 5, 1911, I have written a blog post. Or two, three or four. DAILY.
But while in the hospital, I was unable to access my blog on my cellular telephone. NOT THAT I HAD ANY TIME…
There were tests, and blood draws and injections and largely inedible food.
And friends and family to remind me I had reasons for all this!
To get to the chase, I had HYPOKALEMIA (low blood potassium) and HYPERCALCEMIA (excessive blood calcium).
Many of the recommendations for each disease are opposing, i.e. one says drink more water, the other, less water!
AND, I get to visit many doctors, because it’s undetermined WHY this is happening.
(at least I am home!)
So I arrived late (not my usual form), and they fit me in.
The ultrasound was easy, gooey and painless, about 10 minutes,followed by blood and urine samples (I presume I passed!)
Thursday is doc follow-up.
ANOTHER medical test…
Seems both my primary physician (and kidney physician) thought after years perfectly functioning kidneys, I should go in for an ultrasound.
So, this morning, I get to fill up on water, NOT evacuate my kidneys, and drive the 15 minutes to the clinic for an ultrasound.
THEN, wait until the procedure.
Great. Nearsightedness. A fused hip. A serious automobile accident. Diabetes. Lymphoma.
Now Kidney Disease.
I haven’t yet been shot!
Maybe someone should shoot me now and avoid the rush?
I’m beginning to think I will look like this in short time:
Cataracts (insert joke about Japanese luxury cars here!)
Seriously, I already was aware I had them, from my last eye exam.
As a card-carrying diabetic, I am supposed to have my head examined, ahem EYES examined, annually.
I obtained secondary eye/dental insurance for this year, having used MEDICARE previously.
The problem was, I traditionally was examined in January, and hadn’t met my deductible yet! And $150 is difficult to acquire.
SO, I obtained a secondary. Which also had a deductible. And as normally I would only see my ophthalmologist once annually….
You get the idea.
Suddenly, my primary health care insurer called me. “Why haven’t you had your diabetic eye exam yet?”
“Well, I don’t have the cash!”
My primary insurer told me they would cover the exam, as long as I stayed in their network. I would only pay my specialist fee. $25.00.
The call was last week. I saw the eye doc Tuesday THIS week!
Cataracts? Yes. Something may need to be done in three to five years.
My retinas? (the big concern of diabetics and their doctors). EXCELLENT!
Next, I need to scare up funds to get new glasses, and I am golden.
There has been much media attention of late regarding ‘the opioid crisis’.
This is directly parallel to the the so-called Drug War.
Or ‘gun violence’.
Those who wish to insert governmental controls into private actions often label (insert issue here) as a ‘crisis’.
President Nixon started the War On Drugs in 1971. Here 40 years later, billions of dollars later, thousands have been incarcerated, and little illegal drug commerce has been stopped.
And numerous States have decriminalized and/or medicalized previously illegal drugs.
People continue to be shot en mass in Illinois and elsewhere.
And people with legitimate prescriptions are being squeezed more and more because their physicians and pharmacies are.
By the ‘well meaning’ federal government.
A recent study noted that something like a whopping 1% of those who have opioid prescriptions are abusing them.
The lions share of abuse comes from those who steal, smuggle and illegally obtain such drugs.
Are you surprised?
I sometimes take a relatively low dose narcotic, which I get through a legal prescription, to deal with my chronic pain. I know others who take a much higher dosage than I, who must constantly wrestle with the increasing pressure on the medical community.
While the bad guys make billions from illegal users, largely unchecked.
Read between the lines.