Well, after two substandard care homes, and a PET Scan, I finally found a decent place to live with better food, and have good news to report.
This is made possible as my lovely friend and ex-wife has loaned me her older Kindle, and my oncologist who has been treating me with chemotherapy.
His latest report (Thursday last) indicates the lymphoma tumor has shrunk .
There’s more work to be done. Thanks for your good thoughts and prayers!
Well, here I am on the down side of chemo #4.
I expect to be done in about 4 hours. (Saturday, February 10)
No ill affects except tiredness! Thus far.
My ex-wife, who is a good friend, found a transportation service, for use in the short-term. Wheelchair room to room service, at a cost.
Then, it’s back to the daily grind of the private care home.
(hopefully better than last week’s abortive attempt)
My oncologist made arrangements for me to spend another 24 hours in the hospital adjacent to his clinic, as he’s no one beefy enough to move me from the wheelchair to the recliner and back.
Hopefully, I can be wedged into my ex-wife’s car!
There are beefy folks at hospital admissions…
And yes, I will be wearing a mask, with all the crud going around and my low white count.
After the chemo, I’ll be held for observation.
Then released to my Sister, who will bring me to the new assisted living home. (where I have been has been abhorrent!). This place is closer to home and many friends and family.
I completed chemo in the middle – of – the – night and left early afternoon.
The new place is less crowded, cleaner, and seems to have better food!
Anyplace would be up.
A few glitches, but there always are, and I expect them to be resolved.
Another chemo tentatively scheduled for in three weeks. Probably another overnight.
Feel OK-no nausea.
One treatment at a time.
Thanks for continuing to be there, and for the kind words, thoughts and prayers! 😁
A difficult past twenty-four hours.
Arrived at the doc’s office for chemo. Not on the schedule – was scheduled a week ago.
After some emotional back and forth, (with thanks again to my Sister, who has been madame ombudsman for many of my trials) and my ex-wife, who provided transportation (through the American Cancer Society last week and this) who got in the face of the doctor and staff to get the error corrected, saw the doctor both at the car and in the office before a decision was made.
I was to be admitted overnight to the adjacent hospital to take the chemo and for observation.
Part of the reason why is he had no aids beefy enough to assist me moving from the car to the wheelchair ; and wheelchair to chemo recliner.
So I went to the the hospital and waited two hours in the painful chair for admission.
Finally got into a bed around 1100 – chemo began after 1400.
They left after 0130 Saturday – chemo began on Friday.
Hardly the five /six hour time frame it would have been in the doc’s office.
Then, blood work @ 0200, vitals @ 0500,an IV @ 0600, pain from too rapid infusion @ 0620.
HARDLY A GOOD NIGHT SLEEP!
The ‘good news’ – no ill effects (nausea) as yet from the chemo!
The ‘less than good’ news – the oncologist, based on my age and weakness gives me a prognosis of 20-30% of beating this variety of lymphoma!
Quality of Life?
The assisted care facility is of poor quality.
Hardly quality of life.
Do I give up and move to a hospice or home?
Judy doesn’t have the tools to care for me 24/7. And I don’t want her to be forced to watch me deteriorate. And go.
I have new (theoretically better?) insurance after 1 January, so there may be other options soon.
And I may get one or two more chemos out of this insurance.
Guess it’s up to me to decide.
This Wednesday my insurance stops paying for my nursing facility and PT.
I am still unable to walk without a walker, and going home is problematic.
Fortunately, my lovely Sister stepped up and I am scheduled to be moved to another home, on her dime.
Hopefully, my rehab will continue and I will soon be walking.
Unfortunately, Judy is having financial difficulties involving both our house and car. She has returned to work, but lost many clients due to her long absence.
Any help would be appreciated.
When it rains, it pours.
I’ve wasted a lot of time in a hospital, and finally have been transferred a skilled nursing facility.
They are working on the to increase my strength with daily PT. The goal is to get me strong enough to live at home independently, and ultimately strong enough to survive the next course of Chemotherapy.
Who knows how long this will take?
I am weak, and think of you all every day.
And I miss my blog routine.
But, one thing at a time.
My thanks to you you all for continuing to come back here. I appreciate your support.
So, I went to the oncologist (a truly good, and knowlegable guy) the other day. He had examined my numerous blood samples, bone marrow samples and and bits of lymph nodes. and determined…
Seems he had a good general idea what cocktail he should give me in chemo form, but wants it more exact.
So, it’d back to outpatient for another biopsy! Soon.
Hurry up and wait. Sound familiar?
In my world, my lift chair has given up the ghost. Futile repair is ridiculous, ending ending with finding out that chairs out of warranty bought at Costco are loss leaders, and meant for disposal.
I’m thinking of beginning a Fund-Way sight…
My knees cannot take it, anymore.
(but I’ve been kind occupied…)
Today, it’s another blood test.
(Yes, I’m back, having been gone due to circumstances beyond my control.)
History does indeed repeat itself, my friends!
(And NOT usually in a good way.)
I’ll cut to the chase – LYMPHOMA, which I thought I had beaten in 2010, has returned.
Obviously, this is related to my poor kidney and blood test numbers over the past few weeks.
I have returned after yet another five day hospital hiatus.
The game plan is to give myself home injections daily this week, have a PET scan, more blood work, and compare all this data from the CT scan, lymph node and bone marrow biopsies I’ve already received in the hospital.
THEN, use this data to create the drugs I am to receive in out-patient chemotherapy, hopefully next week.
(Not to worry, I’ve been through all this seven years ago.)
My commitment to you Dear Friends, is to blog again daily, as often as I am able.
(from Gun Talk Media)
Did you ever feel as though things are upside down with the media and what people think is important?
I sure do. So, when Mike Wood sent me a short piece he had written, it connected completely with me,
and it’s a great explanation of why many of us often feel a bit confused, and often disconnected to
what the collective wisdom appears to be.
If you are familiar with the Superman Bizzaro World, where good is bad, up is down, etc., you’ll get it. – Tom
On Fascism and Kryptonite
By Mike Wood
“As I consider life in modern day America, I can’t seem to shake the feeling that
somewhere along the way, the wires got crossed and the current was reversed. The America that I
grew up in was so fundamentally different from today’s version, that I sometimes have to question
if the two even share a relation. Did I somehow manage to miss a grand, cleverly-concealed,
“bait and switch” of American culture, language, and values?”