Well, I’ve broken on through – the first of four chemo sessions (with week three OFF), session one ostensibly the worst! Or at least the longest…
0730 to 0430 yesterday (Tuesday).
Two different flavors, plus the anti-nausea meds (which had the worst of the side-effects thus far!)
We’ll see what’s in store NEXT Tuesday…
Meanwhile, I’m experiencing light nausea – and my meds are downstairs. (Be prepare
Oh well, live and learn…
So, I scheduled to begin chemotherapy today. In a rather convoluted manner.
My oncologist applied for assistance, which meant Day 1, Friday was covered. I had to pay /day 2 – next Friday.
Week three was a week off!
And there was the Fourth Friday, which was covered again by insurance.
Then I was fully covered though the end of the year!
Obviously, I’m changing insurance next year for a lower catastrophic deductable!
The fly in the ointment? We’ve nor yet heard back from the assistance!
So were postponed until Tuesday!
It’s always something…
I returned from the oncologist yesterday with more specificity.
I have been diagnosed with Diffuse Large B Cell Lymphoma, double hit phenotype which is considered a more aggressive type.
This differs from the Diffuse Large B Cell Lymphoma which I contracted in 2010.
And the the treatment, while still outpatient, will be more rigorous.
Chemotherapy Treatment may begin as soon as next week, which means which means I may miss a few more keyboard days.
Please keep me in your thoughts, if that’s what you do.
Going in 0730 to ostensibly have a electrocardiogram, and another lymph node biopsy, and perhaps a port installed (pre-chemotherapy.)
Maybe see ya Tuesday…
Well, today I get to pick up my ‘films (‘from my last MRI and PET scan) and deliver them to the surgical center miles away, wherein this coming Monday I get to have another MRI (using those as maps) to obtain yet another MRI and lymph node biopsy.
The hope is the diversity of the samples will provide a better sample with which to produce a more precise chemotherapy cocktail with which to treat the lymphoma.
Hopefully, this can be concocted and administered later this week, or early next week.
(Just out of curiosity, why do the doctor’s rely on their patients to be messengers-some of whom are weak and ill?)
While they are in there, they they will also be doing an angiogram – just because they found a tiny problem they want to check.
Things aren’t complicated enough…
(If it is, I will remove it!)
Over the past few weeks, I have become weaker. Lymphoma can do that. I’ve loss muscle-mass, making getting out of my orthopedic lift chair difficult, sometimes even impossible.
The chair herself is now broken and irreparable. Chair experts advise I am in need of a new one. This is not like buying an ordinary chair. They are build for patient height and weight, and many stores simply want to move them off the floor, patient need come-what-may.
And, of course, I’ve few funds.
My friend (an ex-gf) said she will set up a donation page toward this end. And my ex-wife (a different person!) told me she to help!
A quality chair can cost well over $1200, funds I do not have. And, given my circumstances I NEED a chair with a warranty.
And in the past month I have had to call the fire department FOUR TIMES to help me get out of my broken chair!
(How pathetic is that!)
Below is Judy’s Fundly Account she set up on my behalf. Of course, there is also the PayPal account on this blog.
If you can take action, terrific, GREAT! (and THANK YOU) If you are unable, please keep a good thought…
My friend Guffaw has been handicapped since he was 12. And now he has lymphoma for the second time. He cannot get up easily normally, but now is so weak, it is impossible. Help..
Since Thursday last, I’ve been living on oral medication, in the hope that it will keep my blood count at a correct level. lest I return to the hospital.
Today, I go to the oncologist/hematologist, to hear about his analyses of my bone marrow, blood and numerous blood tests. His analyses will determine what variety and schedule for chemotherapy I should be receiving.
And, of course when this will begin, and when I shall receive my ‘port’. (for the uninatiated, a port is a large IV, installed mid-chest, to accept said medication. They cannot use an arm, as those blood vessels are too weak to handle the poisons they are to give me.)
Better than dying of lymphoma, I suppose.
I will keep you advised, as I can.
Thank you all for your thoughts and prayers. – Guffaw
If you’ve not noticed, I’ve been doing a lot of whining recently. (And how could you NOT?)
Health issues, money issues, issues with insurance, maintenance and repair of the residence, yatta, yatta, yatta…
Sometimes it’s all on which I focus.
But, recent events have come to pass involving others, which puts things in perspective.
My friend and former boss, John, with whom I recently re-connected on FB, has had it rough. When I knew him back in college, he had it ‘all’. Former Marine, married to a beautiful woman, a nice house. I had none of these things. During the subsequent years, he lost his marriage, his home, his livelihood.
Sometime in the interim, he rejoined the Service, the second time the Navy!
After his discharge he lived on the streets for eleven years!
He is now on VA-related disability, and helps homeless vets with his own funds when he is able (!)
Sadly, he is battling a slow leukemia. And just found out that his heart is failing, AND, he has lung cancer!!!
In another part of the Republic, Brigid’s father may be on his way out. He is a WWII AAC veteran, and still lives in Brigid’s childhood home. He recently contracted pneumonia, often deadly for older folks. His next birthday he will be 97. If he makes it.
Here are two fine men. They have served their country. Raised decent and proper children. One of whom is a dear friend.
And here I am whining.
I am currently in an undisclosed location (paid for by J’s homeowner’s insurance). A hotel, enabling us to get a hot shower and stay out of the repair zone while the insurance adjuster, contractors, plumbers, et al fight it out for repair of the one bath in the house with a shower. Because of a ceiling leak.
I worry about the minutiae. Having to use part of the deductible funds to ‘secure the room’, for example.
But, while I am ill, it doesn’t appear lethal.
Perspective, I’m tellin’ ya!
Be grateful for that which you have.
I’m still learning this lesson…
It’s February 8th.
Regular readers might remember this is my daughter Molly’s birthday. In this case her 34th. Sadly, she only made it to her 12th. 😦
(The twenty-second anniversary of the accident that took her from us is in about five weeks.)
I try to remember happier birthdays.
Last year, another element was added to this date.
Bob Hall, my dear friend whom I met when were worked as private investigators together, who before had attended junior high and high school with my then wife-to-be, and later managed the Legendary Gun gun store (where I worked part time, for a while) in 2016 passed into eternity. Complications from cancer.
See, I told you this time of year sucked for me.
care about love, passing way before their time is a travesty!
Please take the opportunity today to hug those close to you, and tell them you love them.
You never know…
My dear friend Bob Hall passed away February last. He had suffered complications from diabetes (first losing a big toe, then the lower half of a leg), then ultimately acid reflux lead to GERD, and then esophageal cancer. The last few months of his life, he was eating through a feeding tube. Lost half his weight, and was fighting pneumonia which finally took him.
I had known Bob, first as my investigation boss at Tom Ezell & Associates; later as my boss at Legendary Guns of the West (where I worked part-time), since 1981. More than being a boss, he was a dear friend. We saw each other through the stuff of life. I’ve a stepbrother – Bob and I are much closer.
He was always honest and true to me. His trademark was nothing is so serious that a joke cannot be made about it. Irreverent humor – Firesign Theatre and Monty Python quotes were often exchanged between us.
He was a crack shot and loved to go ‘to the desert’ to go shooting. Even in his final days, using a walker. And he passed his love of guns and The Second Amendment to his wife and daughters.
He didn’t want a somber funeral.
I heard from one of his daughters that this Saturday (yesterday) was to be his memorial celebration. A caravan of his friends and family went to the desert to one of his favorite shooting spots, did some eating, shooting, then spread his ashes.
Bob’s favorite things, family, shooting and grilling – combined!
I was honored to have been invited, and was honored to bring and shoot my 1911 – a National Match slide on a Vega frame, with lowered Bomar sights, a Micro bushing, and Swenson ambidextrous safety, hand-fitted by gunsmith Burke Hill. Which Bob sold to me in 1983.
I dubbed her The Bob Hall Signature Model. My roommate calls her Bobbie.
It’s been probably 20K rounds, and except for occasional cleaning, lube and replacing the recoil spring @ 3000 rounds, not much has changed. She remains a tack driver.
Essentially a race gun (c) 1977.
And she is my companion when the Phoenix weather permits.
Bob sold her to me for a pittance. He never profited from guns he sold to friends. And I had to make payments to him, I was so poor! (having been a new father at the time.)
It’s only fitting I take her to what Bob called Burro Town to shoot her one more time.
So, about eighteen of us gathered yesterday. Did some shooting – ate BBQ chicken with all the fixings. (including cherry cheesecake – Bob’s favorite!)
Then, we stood in a circle and shared memories of Bob. There was tears and laughter. Then Anita (Bob’s wife) asked those who wish to to take some of Bob’s ashes and place them about Burro Town*.
Then, we shot a simultaneous volley in his name. All of us using guns once owned by him!
This is the photo the family chose to place on the food table. Bob hated having his picture taken.
(*It was named Burro Town by Bob, due to the wild burros that wander the region. Usually, we see a few. Yesterday, they were absent.)
But we who loved him were there.